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Improving the diversity of those involved in clinical research in the North East of England

Improving the diversity of those involved in clinical research in the North East of England

Overview

Share your views on how clinical researchers can involve those from minority communities

  • 1 hour
  • One to one discussion
  • Influence

Taking Part

To register your interest in taking part in this opportunity, please click the button below.

By doing this you agree to sharing your details with the opportunity owner.

This opportunity closes at midnight on the 13th of October.

I would like to take part

Aim

It is widely acknowledged that patients and members of the public should be involved in the planning, management, design and conduct of research. However, research shows that ethnically minoritised communities are often not fully represented in patient and public involvement. Existing practices can limit the variety of views and perspectives involved, often reaching a certain type of individual not representative of the patient population which research ultimately aims to help.

If the diversity of views and perspectives involved in research is not representative of the people who the research aims to help, the research it is likely to have less impact. In the case of clinical trials, a lack of diversity may skew results or limit the value of the new knowledge and understanding generated. The Covid-19 pandemic has further highlighted this issue, showing that minoritised ethnic communities are frequently at both the greater risk of disease and less likely to be involved in research. Understanding how members of the public from ethnically minoritised communities could be supported to become involved in research would help organisations to deliver its mission more effectively.

Volunteer Criteria

This research aims to capture the perceptions of individuals from ethnically minoritised communities in the North East of England who are not already involved in clinical research.

By analysing the data (peoples responses to questions in the interview) researchers aim to identify practical recommendations for building on and developing the enablers, and overcoming or reducing the barriers to involvement.

What will I be asked to do?

Participation will involve a semi-structured interview with the researcher which will last approximately one hour.

When and where?

The interviews will take place via Zoom or Microsoft Teams or in person at a pre-arranged time that is convenient for the participant.

Interviews are likely to take place at the end of October/start of November.

Will I get anything for taking part?

As this research project is for the award of a masters degree, no payment or expenses are available.

Your insights will have the potential to inform the future development of plans for involving people in research.

Newcastle University

Owners

Taking Part

To register your interest in taking part in this opportunity, please click the button below.

By doing this you agree to sharing your details with the opportunity owner.

This opportunity closes at midnight on the 13th of October.

I would like to take part

Improving the diversity of those involved in clinical research in the North East of England Discussion

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Ianeon

Ianeon

17th September 2022

"This research aims to capture the perceptions of individuals from ethnically minoritised communities in the North East of England who are not already involved in clinical research."

"If the diversity of views and perspectives involved in research is not representative of the people who the research aims to help, the research is likely to have less impact. "

mmm - you are trying to attract people who are not already involved in clinical research - then surely VOICE is the wrong place to advertise this request(?)                                                                                        
By definition, VOICE is an organisation for people who ARE interested in helping.                   
Shouldn't you be advertising in other places & using other means(?)                         
Making the unaware – aware(?)



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