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Improving detection of ovarian cancer using store loyalty cards (Cancer Loyalty Card Study)

Improving detection of ovarian cancer using store loyalty cards (Cancer Loyalty Card Study)

Overview

This is an opportunity for women in the UK to participate in an innovative research study exploring the use of high street store loyalty cards to predict possible ovarian cancer to reduce delays in diagnosis and treatment.

  • Research Participant
  • Participate

Taking Part

To register your interest to participate in this research, please click the button below which will take you to the research project webpage and sign-up form.

I would like to take part

Aim

The Cancer Loyalty Card Study based at Imperial College London and funded by Cancer Research UK (CRUK) is inviting women living in the UK to take part in a new and innovative research study to work towards reducing delays in ovarian cancer.

Ovarian cancer is often diagnosed late when the cancer has already spread - many women are diagnosed at stage 3 or stage 4 ovarian cancer. This is because the symptoms of ovarian cancer are vague. The five-year survival rate for stage 2 cancer is 68% and drops down to only 27% at stage 3 and 13% at stage 4.

With help from women without ovarian cancer diagnosis, we can compare shopping history with ovarian cancer patients to see if signs and symptoms were treated with over the counter medication.

In this study, researchers are looking at over the counter medications women buy before they are diagnosed with ovarian cancer.  For example, do they buy more pain killers or medicines to help with digestion. Researchers think this might provide a new way to help identify signs of ovarian cancer.

Store loyalty cards record the items people buy. Researchers plan to collect this information from participants who agree to join the study and has at least one loyalty card from the supporting retailers.

The researchers will then compare the 2 groups of women (with ovarian cancer and without) to see if there is a difference in the products they buy.

You can find out more about the study by watching the video at the bottom of this page.

Volunteer Criteria

Women in the UK, 18 years or older, who have not been diagnosed with ovarian cancer, and hold a loyalty card with certain high street stores (as listed on the project website (https://www.clocsproject.org.uk/participants-0).

We invite individuals to share this opportunity widely with others who may be interested in participating in this important and innovative research.

 

What will I be asked to do?

You can take part via the CLOCS study website (www.clocsproject.org.uk/participants-0). You need to complete a consent form and an online questionnaire as well as provide a proof of ID and address. A proof of ID and address are required for the retailers to share your past purchase information.

Everyone taking part completes a short questionnaire (10-15 minutes) asking about risk factors for ovarian cancer. It asks:

  • if you have had children or not
  • about your cancer history
  • about any medical conditions
  • about your loyalty card use

You can withdraw from the study at any time by contacting the reserach team on [email protected] 

If you have any queries or feedback regarding the research project, or would like any further information about the use of your data you can get in touch with the research team to discuss further by emailing [email protected] 

 

When and where?

You can find out more about the project and sign up to participate via the project website:

www.clocsproject.org.uk

If you would like to complete the sign up form in a paper version, you can contact the research team directly via [email protected] to organise this.

Will I get anything for taking part?

No incentives are provided to participants except our sincere gratitude.

While there will be no direct benefit to participants,  participants will help contribute to shaping the future ovarian cancer diagnosis.

Further information about the research project

Imperial College London


Privacy Notice

Imperial College of Science, Technology and Medicine (the “College” or “Imperial”) is committed to protecting the privacy and security of your personal information. This privacy notice describes how we collect and use personal information about you during and after your relationship with us, in accordance with the applicable data protection legislation and the College’s Data Protection Policy.

Please find the Privacy Notice here.

Get In Touch

If you have any queries about the research study, participating or withdrawing from the study please feel free to get in touch with the research team via the following email:

Owners

Taking Part

To register your interest to participate in this research, please click the button below which will take you to the research project webpage and sign-up form.

I would like to take part

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