Ensuring well-being for people living with dementia and their carers following hospital discharge
Many older people who are admitted to general hospitals and then discharged have problems with memory and cognition. Despite this, little research has been done to explore their and their caregivers’ experiences after returning home from hospital. The impact of COVID-19 measures on the hospital discharge process and on the support available in the community is unknown.
This study seeks to gain a fuller understanding of:
- The community support available for people living with dementia and their carers
- Opportunities and challenges to supporting wellbeing in the community immediately following hospital discharge
- How COVID-19 has impacted on the hospital discharge process and available community support
The information collected in this study will be used to help identify how the discharge process can be improved for people living with dementia and their carers. It will also be used to identify potential support mechanisms available within the community.
For this research, we are interested in talking to carers or relatives of people living with dementia in the community about their experiences of the hospital discharge process. We are also interested in your views on the discharge experience of the person you care for/your relative and your opinions on the support available in the hospital and in the community following hospital discharge, before and during the COVID-19 pandemic.
We are looking for:
- Carers of people living with dementia who have been discharged from hospital in the last 3 years
- Carers who are related or unrelated to the person living with dementia
- Carers will be self-identifying, and the definition of carer will include all aspects of the caring role including physical, emotional, social, and organisational caregiving
- Carers must be over the age of 18 as the focus of the study is not on the role and experience of young carers
- Carers must be based in the UK
What will I be asked to do?
You will be asked to take part in a discussion with a researcher about your experiences of the hospital discharge process.
Interviews will last no longer than one hour and will be held at a time that is most convenient to you. Interviews will take place via telephone or Zoom or Teams. An informed consent discussion will take place before the interview on a separate occasion. During this discussion we will talk about what taking part in the study entails, the potential benefits and disadvantages of taking part and the questions that will be asked. At the end of the discussion, the consent form will and signed and emailed/posted to the researcher.
Taking part in this study will give you the opportunity to express your views about the support available during the hospital discharge process and in the community for people living with dementia and their carers both before and during the COVID-19 pandemic. You will also be able to share your experiences of being a carer/relative at this time, with interested researchers. The material gathered for this study will contribute to evidence surrounding improving hospital discharge procedures and community support mechanisms, for people living with dementia and their carers.
When and where?
Interviews or consent discussions will take place at a time and date convenient to the participant via Teams, Zoom or telephone.
Ensuring well-being for people living with dementia and their carers following hospital discharge Discussion
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