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Transplantation: Online Discussion

Transplantation: Online Discussion

Overview

This is an opportunity to take part in an online discussion about transplantation to influence a national research funding call. Dr Robert Gray will be moderating the discussion and replying to comments from Monday 25th September - Monday 2nd October but it is open for you to leave your comments before then.

  • Monday 25th September 2017 09:00
  • Discussion
  • Influence

Taking Part

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The Efficacy and Mechanism Evaluation (EME) Programme is a funder of medical research and is managed by the National Institute of Health Research (NIHR) and the Medical Research Council (MRC)

It is currently considering inviting researchers to submit applications for research in the area of transplantation.

The purpose of this opportunity is to hear the thoughts of those with experience of transplantation – either themselves or as a friend or family member - researchers and healthcare professionals. The aim is to determine whether there is a need for research in this area, what the current challenges faced are, and whether research could lead to improvements in care.

By answering the questions we will ask you and taking part in the discussion, you will be helping us to fund the right research. These comments will be used to develop a research brief.

Some potential areas of interest, which aim to address these challenges, are listed below. We would particularly welcome your comments on whether these are the most important areas:

  • Ways to improve or better assess the quality of donor organs, to increase the number that can be used.
  • New transplant procedures.
  • Treatments to improve the success of transplants.
  • Treatments to limit problems following transplant procedures (please note, this does not include ‘Graft vs. Host Disease’)
  • New technologies to monitor the success of transplants after the procedure.

For more information and guidance on answering these questions, please refer to the supporting information below:

To take part in this discussion you must have experience of transplantation - either yourself, a friend or family member or as a researcher or healthcare professional.

By clicking 'I would like to take part' you will be confirming that you have experience of transplantation. The discussion will then appear at the bottom of this opportunity page.

Research that reflects the needs and views of the public is more likely to produce results that can be used to improve health and social care. We need your knowledge and personal experience as a member of the public, a patient, relative and/or carer to add to the advice we receive from clinicians, researchers and other health professionals.

A research brief describes a potential area of research we are hoping to fund. This topic has already been discussed by our programme strategy group. The next stage (this stage) is to gather the views of public contributors who have experience of conditions, therapies and services as a patient, relative, carer or service user. We also ask clinicians, researchers and other health professionals to review the research brief to ensure that the brief has picked up all the main areas of research activity. 

All the reviews are brought together and will help to form the research brief. The brief will then be presented to the Strategy Group, who will then make the final decision as to whether the proposed research topic should be advertised to researchers who would apply for funding.

A transplant involves an organ or tissue, such as skin, being taken from one place (often another individual) and transferred to another.

Transplants are currently used to treat a number of health problems, but are limited by availability of suitable organs/tissue, which can sometimes lead to patients waiting a long time for treatment. In 2015, 30% of patients on waiting lists in the UK had been waiting for more than two years.

Transplant procedures – like any other type of surgery - are not risk-free. Some of the complications can be very serious. Although most of these problems will occur shortly after treatment, some can develop after many years.

In the first part of this opportunity, we would like to hear your thoughts on the topic area. answering the following questions and giving as much detail as you are able.

1.    From your point of view, could you outline the importance of this area?

With your help, we would like to understand what the current public/patient/relative/carer experience is, how that experience would potentially change as a result of the research and whether such a change would be welcomed by public/patient/relative/carers.

2.    From your experiences, is there anything which you would like to see included?

Some suggestions are included in the bullet points above. You may like to think which aspects of the condition/disease/treatment/circumstances may change as a result of the research, and which ones are important to you and should be examined by the research. Please let us know if you think anything else needs to be looked at as part of the research.

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Transplantation: Online Discussion Discussion

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