Technology enhanced macular services
This project aims to see if and how new technology can improve services for the most common cause of blindness in the UK.
The research team would like 2-4 VOICE participants to contribute their perspectives on ophthalmology services and the research project through a reference group meeting with the lead researcher. These perspectives will feed into study advisory group meetings involving a macular service user, their carer, ophthalmologists and university academics. Perspectives from individuals who are yet to have significant experience of modern hospital ophthalmology services will complement those of the individuals involved in the study advisory group. This is important, as this study is concerned with what ophthalmology services should look like in 5-10 years' time so it should not be limited by the current status quo.
In particular the study will take a fresh look at research that has already been done looking at the roll of artificial intelligence in healthcare, before interviewing lots of different people involved in NHS ophthalmology services to see what future services for people with macular degeneration could and should look like. Both pieces of work will try to consolidate all the information into practical tips for future service development. By contributing to this process VOICE members will help to ensure these tips describe an ophthalmology service that meets the needs of the people it is meant to serve.
To take part you must:
- have no prior significant personal or professional experience of hospital ophthalmology services
- be aged 60 or over (to represent demographics of people who may use the service under consideration in 5 years or more)
- English language speaker (unfortunately the project does not have funding for translator services)
What will I be asked to do?
You will be asked to attend 6 meetings either in person or virtually between April 2021 and April 2024. These meetings will be roughly 2 hours long and involve an explanation of how the research project is progressing and what processes are ongoing. Different aspects of the research will then be open to discussion depending on what stage the project is at. For example, early on it may be how to address questions posed by the research ethics committee, at an intermediate stage it may be how to interpret some of the themes arising from participant interviews and towards the end it may be how best to spread the findings of the research in a meaningful way to the public. The researcher attending these meetings will then take the ideas and perspectives of VOICE members forward into the study advisory group meeting which will direct the progress of the overall project.
When and where?
Meeting dates and times will be arranged with selected participants. Any physical meeting venue agreed upon will be within the North East region but meetings can also take place online via Zoom, Microsoft Teams, Google Hangouts etc.
Will I get anything for taking part?
You will receive £30 for your time attending each of the 6 meetings. For any meetings taking place in person, travel expenses within the North East will also be reimbursed.
Technology enhanced macular services Discussion
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