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Public involvement panel for the development of a new early diagnostic tool for Parkinson's

Public involvement panel for the development of a new early diagnostic tool for Parkinson's

Overview

Share possible thoughts and concerns about the project and help advise on how to best involve the public throughout.

  • Public/Patient Representative
  • Influence

Taking Part

This opportunity has already taken place

Aim

The main aim of the project is to develop a new early diagnostic tool for Parkinson’s using artificial intelligence to analyse images of the eye. To do this, it will use NHS data of eye scans and feed this into artificial intelligence algorithms, to train it to recognise the characteristics associated with Parkinson’s. As the eye scanning technology is already available in an increasing number of high street opticians, the ultimate goal is that the testing becomes part of a routine eye test.

VOICE members are needed to gather their thoughts and opinions about the use of NHS data, artificial intelligence and testing for Parkinson’s in this way. You will be alongside optometrists, ophthalmologists and those living with Parkinson’s on the panel. Your opinions are valued as they may help guide the research process and certainly will shape future public events.

Volunteer Criteria

This opportunity is open to anyone. 8 members are needed to help form the panel. A diverse range of ages, ethnicities, sexualities, genders and life experience is valued.

What will I be asked to do?

You will be asked to attend 4 panel meetings. Meetings will last around 1 hour each, and attendees will be asked to discuss potential issues or concerns in the area of the project. They will be recorded for research purposes but anything you say will be completely anonymised when written up.

When and where?

The first meeting will be held as soon as the panel is formed, and in July, December, and February. The first will be held over Zoom, but after this, it is at the request of the panellists whether the remaining sessions will be held in person or over zoom.

Will I get anything for taking part?

Travel expenses (if applicable) will be reimbursed, and panellists will be given a £10 Amazon voucher to thank them for their time and contribution.

Newcastle University

Taking Part

This opportunity has already taken place

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