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Participation in our online animated 'role-play' study of being offered a new screening tool

Participation in our online animated 'role-play' study of being offered a new screening tool

Overview

You will be taken through a hypothetical eye test scenario and offered a screening tool for neurodegenerative diseases.

  • 15 minutes
  • Questionnaire
  • Influence

Taking Part

Sorry, this opportunity is closed and you can no longer apply to take part

Aim

By the time Parkinson’s disease is diagnosed, much of the essential functioning in the affected area of the brain has been lost. Therefore, early diagnosis is key to beginning treatment early. As the eye is essentially an outgrowth of the brain, changes in the back of the eye are associated with changes in the brain, which can be viewed via 3D scanning Optical Coherence Tomography (OCT), increasingly available in high-street optometrists. Although these changes are often too subtle for the human eye to detect, recent advances in artificial intelligence (AI) and machine learning allow for the possibility of screening for neurodegenerative disease as part of a routine eye test, allowing for earlier diagnosis and subsequent treatment. This possibility is being pursued by the wider OCTAHEDRON project amongst other research groups. However, this raises the critical question of whether the public would want to be screened for to detect the early signs of neurodegenerative disease such as Parkinson’s. Therefore, this sub-study of the OCTAHEDRON project aims to investigate the factors that may influence an individual’s decision to use such a tool, by simulating a trip to the opticians.

  • The general OCTAHEDRON website: https://research.ncl.ac.uk/octahedron/
  • The survey should only take around 10 to 15 minutes to complete.
  • Participation of VOICE members will contribute to the aim of mapping a route for improving acceptability and uptake of such a tool, if (most likely when) it becomes available. For example, the results may advise on which groups may benefit from interventions to encourage screening uptake or raise awareness.

Volunteer Criteria

  • Aged above 18,
  • Reside in the UK,
  • Fluent in English.

What will I be asked to do?

The online survey will take around 10-15 minutes to complete. VOICE members, after providing consent, will be asked a few questions before entering a hypothetical scenario of an eye test and being offered a new screening tool for neurodegenerative disease. 

When and where?

This is an online survey study. 

Will I get anything for taking part?

Unfortunately, no reimbursement will be provided for participation in this study. 

Newcastle University

Owners

Taking Part

Sorry, this opportunity is closed and you can no longer apply to take part

Participation in our online animated 'role-play' study of being offered a new screening tool Discussion

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conniesimonton48

conniesimonton48

3 days ago

My grandma has Parkinson’s disease, she is about 75 years old it was detected 7 years ago. Right now it’s getting more difficult to live for her, because of stiff muscles she can’t even move. L-dopa and carbidopa medicines are given, but won"t give much relief. She can"t eat food and the skin is damaging forming ganglia. I thought this might be the last stage and the medications she was given did not help at all, so I started to do alot of research on natural treatments, I was introduced to Health Natural Centre and their Parkinson’s Herbal Protocol. She started on the Parkinson’s Treatment last year, her symptoms gradually diminished including her Tremors, Body Weakness and Muscle Pains. Reach them at healthnaturalcentre .org , She is getting active again since starting this treatment, she is able to walk again ( down the street and back ) and able to ride her treadmill again! God Bless all PD Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for  these remedy but you would probably need to decide what works best for you.

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conniesimonton48

conniesimonton48

3 days ago

My grandma has Parkinson’s disease, she is about 75 years old it was detected 7 years ago. Right now it’s getting more difficult to live for her, because of stiff muscles she can’t even move. L-dopa and carbidopa medicines are given, but won"t give much relief. She can"t eat food and the skin is damaging forming ganglia. I thought this might be the last stage and the medications she was given did not help at all, so I started to do alot of research on natural treatments, I was introduced to Health Natural Centre and their Parkinson’s Herbal Protocol. She started on the Parkinson’s Treatment last year, her symptoms gradually diminished including her Tremors, Body Weakness and Muscle Pains. Reach them at healthnaturalcentre .org , She is getting active again since starting this treatment, she is able to walk again ( down the street and back ) and able to ride her treadmill again! God Bless all PD Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for  these remedy but you would probably need to decide what works best for you.

  • Like
  • Reply
  • Report
conniesimonton48

conniesimonton48

3 days ago

My grandma has Parkinson’s disease, she is about 75 years old it was detected 7 years ago. Right now it’s getting more difficult to live for her, because of stiff muscles she can’t even move. L-dopa and carbidopa medicines are given, but won"t give much relief. She can"t eat food and the skin is damaging forming ganglia. I thought this might be the last stage and the medications she was given did not help at all, so I started to do alot of research on natural treatments, I was introduced to Health Natural Centre and their Parkinson’s Herbal Protocol. She started on the Parkinson’s Treatment last year, her symptoms gradually diminished including her Tremors, Body Weakness and Muscle Pains. Reach them at healthnaturalcentre .org , She is getting active again since starting this treatment, she is able to walk again ( down the street and back ) and able to ride her treadmill again! God Bless all PD Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for  these remedy but you would probably need to decide what works best for you.

  • Like
  • Reply
  • Report

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