Let’s Talk About... Long COVID Research
Our ‘Let’s Talk About’ events started up in April 2020 as a way of rapidly involving the public and people with lived experience in key areas of COVID-19 research at Imperial. They have been critical to informing our research outputs and ongoing research and engagement activity. To allow more people to be involved, this event has adopted a different format to our past activities, but it keeps the same ethos – having conversations with people affected by our research to ensure it considers a diversity of circumstances and perspectives.
The topic of this session is: Long COVID Research
Building on from Imperial's REACT (REal-time Assessment of Community Transmission) study, our REACT-Long COVID (REACT-LC) research aims to identify possible genetic, biological, social and environmental risk factors for Long COVID, alongside understanding the symptoms and experiences of those affected. By combining ongoing public involvement and engagement with formal research surveys, qualitative interviews, and clinical and biological assessments of past REACT participants, this work hopes to improve our understanding of Long COVID, support diagnosis and patient care, as well as shed a light on possible treatment options.
Our team of public advisors have been helping us with the study’s set-up, but now we want to share the plans with the wider community to understand what’s important to you, answer your questions, and be guided by your ideas.
Open to all, but particularly interested to reach those with personal experience of Long COVID who want to:
- Learn about the REACT-Long COVID (REACT-LC) study
- Ask questions and inform how Long COVID research is designed and carried out
- Be further involved in our ongoing community involvement activities
We welcome and encourage involvement from a wide range of people, particularly those who are new to events like this. You do not need to be an expert or have any clinical or research experience to take part.
What will I be asked to do?
Hosted via Zoom, the online session will start with an informal presentation introducing viewers to the research aims and plans of the REACT-Long COVID study, as well as updates on what we’re learning so far. This will be followed by a Q&A session. Everyone will be able to share their questions, comments, insights and ideas throughout the event via the live chat and Q&A function. These will be posed to the research team by our panel of public contributors to steer the discussions and shape our work going forwards.
Your camera and microphone will be switched off during the session.
We will try to answer as many questions as possible. However, all comments and questions shared will be collated after the event and used to inform our ongoing research, engagement and communication activity, including developing an FAQ page online for future reference.
The event will be recorded and hosted on the AHSC’s and partners’ communications channels.
When and where?
Thursday 29th April 2021
Online via Zoom
Who are the researchers behind this study?
This research is being led by researchers from the School of Public Health at Imperial College London, including
- Prof. Paul Elliott, Director of the REACT research programme and Professor of Public Health
- Prof. Graham Cooke, Professor of Infectious Diseases
- Prof. Helen Ward, Professor of Public Health and Director of the Patient Experience Research Centre
It will be carried out in partnership with a wide range of public advisors from across England and external collaborators from Queen Mary University of London, the Francis Crick Institute, Leiden University, Southampton University, Birmingham University and Newcastle University.
The public involvement activity within this research is being led by Imperial's Patient Experience Research Centre.
Watch it now
Please note: as we shared preliminary data during the live session, these have been removed from this recording until they are pre-printed and available to share publicly. We will upload the full recording, including a link to the published work, as soon as it is available.
Feel free to share your feedback about this session, and any additional comments or questions, either in the discussion section below or via this short anonymous online form: https://imperial.eu.qualtrics.com/jfe/form/SV_enFCwlhZ16rg37o
Some other practicalities
- This session will be recorded to make it available afterwards and to help us summarise the conversations, questions, ideas, insights and feedback shared. Past reports available here
- If you need help using Zoom or some other assistance, please let us know in advance
- We encourage constructive comments and feedback and hope this will be a warm and welcoming event. Our Code of Conduct outlines our expectations of attendees
- As we wish to engage as many people as possible, we are unable to offer payment for attending this event but hope you find the content interesting and informative
- If you are unable to attend but still wish to share your questions/thoughts or find out about other ways you could be involved, please email: [email protected]
How to stay informed and involved
- Join the REACT: COVID-19 Community Network on VOICE to receive updates about news, events and further opportunities to support the REACT COVID and Long COVID research (emails will come from [email protected] or [email protected])
- Email any additional questions, comments or insights that you wish to share with the patient experience research team at PERC who will be working on REACT-Long COVID: [email protected]
- More information about the REACT-Long COVID research study, including answers to frequently asked questions, will soon be available from: https://react-lc.net
- To learn more about Imperial’s core REACT programme, please visit: https://www.imperial.ac.uk/medicine/react
Let’s Talk About... Long COVID Research Discussion
Login / Register to take part in this discussion.