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Identifying and predicting apraxia recovery after stroke

Identifying and predicting apraxia recovery after stroke

Overview

An opportunity to share your experiences of stroke (as a patient or a carer) to inform research into apraxia (a neurological condition leading to difficulty performing familiar movevements/tasks) after stroke.

  • 1 hour
  • Public/Patient Representative
  • Influence

Taking Part

To register your interest in taking part in this opportunity, please click the button below.

By doing this you agree to sharing your details with the opportunity owner.

I would like to take part

Aim

Have you had a stroke?  Do you find it difficult to complete everyday tasks such as brushing your teeth, tying a shoelace or making a cup of tea?  Difficulty with the order of the steps in skilled tasks such as these is called apraxia, and may be unrelated to weakness caused by stroke.  

Dr. Elisabeth Rounis (neurologist, Imperial Healthcare NHS Trust) is planning a research project about identifying apraxia and predicting recovery.  This research aims to identify the most relevant tests to diagnose apraxia, and to track the effects of therapy for apraxia in the future.

To help develop the research plans she is inviting people with stroke and apraxia to join an online focus group to discuss the study and share their thoughts and experiences to help inform the research plans.

Volunteer Criteria

We would like to invite up to 10 stroke patients and/or their carers to be involved in an online focus group to help shape this research project.

What will I be asked to do?

You will be invited to take part in a focus group during which you will hear more about the proposed project and have the opportunity to share your views and opinions from a patient/carer perspective. The focus group will last  approximately 1hr and will be held online.

When and where?

The meeting will be held in late June/early July via Zoom.  A date/time has not yet been confirmed and we will liaise with you in advance of the meeting to obtain your availability. We will then try our best to determine a suitable time which will work for those who wish to be involved.

Will I get anything for taking part?

Those involved will be helping to shape and influence research in an area of stroke which is often over-looked. This is initial meeting which is entirely voluntary. Unfortunately, as we have not yet received funding for this project we don’t have funds to support your involvement.

If the project were successful and you would like to continue to be involved in shaping this research, we could provide reimbursement for further public involvement activity throughout the project.

How do I get involved?

If you are interested in taking part in this opportunity, please click the green button "I would like to take part" at the top of this page to register your interest online. Note: if you do not wish to sign up through VOICE, please get in touch with the researcher Dr Elisabeth Rounis via [email protected]

Registration will close on Friday 25th June 2021 and all applicants will be contacted before, or shortly following, this date to let them know the outcome of their application.

Unfortunately, it may not be possible to involve everyone who applies if the number of applications exceed the quota for this opportunity. Priority will be given to establishing a diverse group of people who bring lived experience most relevant to this project.

Imperial College London


Privacy Notice

Imperial College of Science, Technology and Medicine (the “College” or “Imperial”) is committed to protecting the privacy and security of your personal information. This privacy notice describes how we collect and use personal information about you during and after your relationship with us, in accordance with the applicable data protection legislation and the College’s Data Protection Policy.

Please find the Privacy Notice here.

Get In Touch

If you have any queries or would like further information about the opportunity please contact Dr Elisabeth Rounis via

Owners

Taking Part

To register your interest in taking part in this opportunity, please click the button below.

By doing this you agree to sharing your details with the opportunity owner.

I would like to take part

Identifying and predicting apraxia recovery after stroke Discussion

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