Could your experience of COVID-19 inform what we learn from the REACT study?
Imperial College London are looking for people (in England) with insight into the healthcare needs of those affected by COVID-19 to act as paid public advisors on an exciting data science project funded by Health Data Research UK. You may have been affected by COVID-19 yourself, be linked with communities experiencing ongoing ill health after COVID-19 or care for someone affected by COVID-19.
The REACT (Real-Time Assessment of Community Transmission) study is a major programme of nationwide home testing that is helping the Government track how many people currently have COVID-19, and how many have already had it and developed antibodies. During this newly funded 6-month project, researchers will link the data provided by over 1 million consenting REACT participants with routine healthcare data (e.g., GP records), environmental data (e.g., air pollution) and socioeconomic data (e.g. age, ethnicity) to better understand 1) who is most at risk of becoming infected, 2) why some people experience more severe disease or persistent symptoms, and 3) what the public health and healthcare needs are of those affected (e.g. use of GP services, hospitalisation, prescriptions).
So, to ensure this work is carried out with public, patient and participant views in mind, we would like to recruit four diverse public members to advise and support the team.
Applications are open to any member of the public who:
- Is living in England and aged 17 years old or more
- Has lived experience of ongoing ill health after COVID-19 or insights into the healthcare needs of people affected by COVID-19 (as a family member, carer, community leader)
- Wants to ensure health data research considers a diversity of public, patient and carer views
- Would be available for a 1-2hr virtual meeting, 1-2 times per month until 30 June 2021
You do not need to have prior experience of involvement in research, although insight into community health needs (e.g. ongoing symptoms, use of healthcare) would be an advantage.
We welcome applications from anyone of any background with a passion and commitment to help. We are particularly keen to ensure young voices are represented.
What will I be asked to do?
- You will be invited to be part of a group that meets with the research team virtually to share your ideas, experiences and perspectives on the research plan, data analysis, findings, conclusions, communication and anything else you wish to raise.
- You may also be asked to review, feedback or co-design study material and communications electronically to ensure it's relevant and accessible to the public
- Your perspectives will help the research team understand where there are gaps in the data, provide context and personal insight into the risk factors they identify, as well as help shape the priorities and messaging from a public perspective. This may include shaping internal processes around how other researchers access the REACT dataset for research purposes.
- The working group will also be welcome to join the REACT Public Advisory Group to provide more strategic oversight over the broader REACT programme.
When and where?
All communication and meetings will take place remotely, either via email, telephone or via a virtual conference platform such as Zoom or Microsoft Teams.
Dates and times of the virtual meetings are yet to be decided meetings but will be carried out as flexibly as possible to meet the availability of those involved. Requests to review or co-design material will happen intermittently over the duration of the project, as and when it's needed.
Will I get anything for taking part?
Public advisors will be paid for their time and involvement at £25/hr, plus a £5 Wi-Fi supplement for virtual meetings.
In addition, we will provide one-to-one support, training and guidance as needed.
Who are the research teams involved in this project?
This project is being carried out by researchers from the Department of Epidemiology and Biostatisticsand Small Area Health Statistics Unit (SAHSU) at Imperial College London, with the Patient Experience Research Centre supporting and facilitating the public involvement in this project.
How do I apply?
Click the button "I would like to apply" to complete an application form and register your interest in the role.
If you are not a VOICE member and don't want to sign up for free, you can access the application form here instead, or get in touch to complete an electronic copy via email.
Applications close at midday on Wednesday 24th February 2021.
Applicants will be contacted by 7pm on Friday 26th February at the latest to let you know if you have been successful. Unfortunately, we may not be able to involve everyone who applies if we receive a lot of interest. However, where requested, we will keep you informed about the project and give you priority access to related events, activities or other opportunities to be involved in COVID-19 research.
Could your experience of COVID-19 inform what we learn from the REACT study? Discussion
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