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Defining Long COVID symptoms

An opportunity to share what ongoing symptoms after COVID-19 feel like in your own words, as part of informing how Long COVID research is designed and carried out by Imperial College London.

[To translate this page into another language, please use the 'Recite' tool at the top of this site]

What to do:

  • Simply post a written or visual description below of any ongoing, recurrent or long-term symptom you have experienced after or because of COVID-19, e.g. "X feels like..." where X may be symptoms related to breathing, chest, energy levels, sleep, skin, senses (smell, taste, sight, balance etc), mind etc
  • It can be in your own words and/or using a picture or drawing of your choosing/design
  • We’re particularly keen to hear about the symptoms you feel aren't well described, or even those that overlap with other health conditions or remain unexplained
  • You can 'Like' other posts that you feel perfectly describe something you’ve experienced
  • NB. You need to sign-in to VOICE to post a submission directly on this page. If you do not wish to join VOICE, you can submit your thoughts to us via this online form instead. You can then select whether you want us to also post here on your behalf, or just keep for our own insight

How it will help:

  • Your input will help us improve the way we design our surveys and inform what we explore in our interviews as part of the REACT-Long COVID study, as well as give us (and others viewing this page) greater insight into what ongoing COVID symptoms actually mean to those affected.
  • We hope to also use these descriptions as a means to raise awareness of the breadth and depth of symptoms, and their impact, to our local community and health care professionals (HCPs) in a way that is accessible, engaging, and impactful.

Things to note:

  • If you wish, you can use an alias username so that you can share your thoughts anonymously
  • By contributing to this challenge you agree for your comments or images to being publicly available and may be used by us and others as part of promoting the research or sharing experiences of Long COVID. We will credit content to the username shown
  • If you change your mind about this or have any questions, please email: [email protected] or [email protected] 

Want to stay informed and involved?

  • Please join the REACT: COVID-19 Community Network mailing list to receive news updates and invites to events and involvement opportunities relating to Imperial’s ongoing COVID-19 and Long COVID research, as part of the REACT research programme
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Showing 137 ideas from the community

There are so many physical symptoms related to my Long Covid that managing them all and the medical appointments/drug management is exhausting. Coupled with a brain fog which causes me difficulty in planning activities, articulating what I want to say and coordinating my body to do what my mind is telling me to do, makes every waking hour challenging. This has impacted massively on my mental health and I feel permanently low and often despairing....

  • Report

Prior to covid I was fit and well. Since having Long Covid I remain exhausted most of the time and frequently have a crushing sensation around my chest, like someone is sitting on me. I have shortness of breath when walking, especially up hills or stairs My whole body aches and I have joint pains especially in my neck, hands, wrists, elbows and feet. My feet are particularly painful and I have bursitis in my toes.

  • Report

One of the major impacts of Long Covid for me are the changes to my voice. I sing in a choir and Long Covid has left me a reduced vocal range and an element on unreliability to my voice - my voice is often husky and breaks up during singing. My pitch of voice is also lower both in singing and speaking terms and I become exhausted while speaking. I have recently been diagnosed with Reflux and my vocal cords are not closing reliably.

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Strangely I was diagnosed in April 2021 with suspected spontaneous intercranial hypotension after some stretching in my kitchen led to a jolt and few seconds of blackout – After this I had vertigo, head pressure, fatigue, tinnitus and dark/light oras in my visual field which started to die down after a few months, but ever since March of this year they have been exacerbated enormously by Covid. (posted on behalf of Malo09) 6/6

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I have taken umpteen LFT & PCR tests since start of Covid in 2020 & all negative – Also had 3 vaccs. Got a diagnosis from a NHS neurologist in June- migraine headache And post infectious immune mediated inflammatory small fibre neuropathy with some degree of dysautonomia. Improved for 2 mths & thought it was behind me, but 2 months later in August, symptoms started creeping back in & now are pretty bad again (posted on behalf of Malo09) 5/6 ...

  • Report

Extreme fatigue but then unable to sleep due to heart and adrenaline rushes at night… Thought I was going to die. Went on for 3 months.All test results carried out by GP normal, but I took a private positive antibody test and further covid IGG Abbots N protein antibodies test which came out positive with very high levels of antibodies that were proved to be from the virus not the vaccine. (posted on behalf of Malo09) 4/6

  • Report

Experienced acute insomnia throughout with heart pounding each time I fell asleep so it woke me up after an hour or so , racing, with whole body throbbing and left arm numb and tingling. Also horrible burning feeling around heart that travelled all over. Tingling and fizzing feeling in stomach, legs and feet during the day. (posted on behalf of Malo09) 3/6

  • Report

Neurological issues came on during this time as well as Burning, numbness in left side of face, left arm and fingers, vertigo, where felt like walking under water or like a drunk sailor, and also constant intense tinnitus and migraine oras on left side and back of my head. (posted on behalf of Malo09) 2/6

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Started in mid March 2022 with dizziness, adrenaline rushes, rapid heart rate and spike in blood pressure. Burning began to develop all over my torso and legs, with Intestinal issues – 6 weeks of diarrhoea and big weight loss. (posted on behalf of Malo09) 1/6

  • Report

Since having covid I have had intermittent breathing problems with ongoing tests to see if it is asthma, though it has been discovered my diaphragm isn't doing what it should. Tiredness and pain have increased to a higher level (have chronic pain) Now have essential tremors which I believe is from covid. All breathing problems and tremors began within 1yr after contracting covid. Bronja

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My whole body burns like fire. The joints throb and ache. My body overreacts. In some positions and when it's warm, I have extreme shortness of breath. It twitches and vibrates everywhere. Earthquake, volcanic eruption, electricity. I can't rest for a second. Two years of no relaxation. My heart is racing when I lie down and my body is breathing like a marathon. The symptoms are always terrible and do not improve with rest. 24/7 torture, no PEM

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Involuntary Movements feels like I’m not in control of my body. My arms and legs twitch. My head feels like a bobble head, like it’s disconnected to my neck. My legs are wobbly. I feel a sense of relief when I twitch or move.

  • Report

I had covid in Jan 21. I was laid out with it for 4 weeks. I have never been the same since. I am continuously tired, every morning I wake with mucus in my throat that is difficult to remove. I find it difficult to sleep even though I’m tired. I find it tiring to socialise and get short tempered because I’m over tired. Sally J

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Chronic fatigue and PEM means that when I do something (eg. go out to a cafe), I get so tired, I stop being able to walk, and my balance goes. It also makes my brain fog so much worse (Its more like a brain wall !!) I feel really confused, disorientated, my memory goes and its really hard to find words/ talk.

  • Report

Long Covid feels like you are trying to walk through waist deep water with a 5 year old sat on each foot. Every small action you do, gravity is turned up by 50% until can barely sit up right. Then someone phones you and asks you if you are better yet, and tells you that you are not trying hard enough which is, in their expert opinion, why you are still sick. From, Tilly

  • Report

Last two months have had abdominal pain, chest pain, heartburn, and mucus/throatburn. Possibly acid reflux, but the famotidine I'm taking has not been working. Good news is my breathlessness has improved, almost gone. Fatigue and headaches too

  • Report

Last two months have had abdominal pain, chest pain, heartburn, and mucus/throatburn. Possibly acid reflux, but the famotidine I'm taking has not been working. Good news is my breathlessness has improved, almost gone. Fatigue and headaches too

  • Report

I was ill in June and tested negative for Covid but had exactly the same symptoms in July and tested positive so may have had it twice. Since then I have been unusually tired and feel that my legs are heavy. Walking any distance is an effort. My joints and back ache more when I lie down than when I'm active. My hair seems to be thinning particularly on the right side of my head. I haven't felt happy or well since having Covid 19.

  • Report

Gastric issues too!

  • Report

Had covid in Nov 21. After a while, I developed muffled hearing due to negative ear pressure. Now, in September 22, along with that I have a very mild tingling in the face, at times I feel like my forehead gets squeezed, I have a slight sensation of pins and needles on my face and arms (esp at the lip line) and I have sudden cramps in my shins. Sleeping straight and on my left side gives me backache. My eyesight has also started deteriorating.

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Just read through the other comments. Good to know I am not alone. I hadn't expected the gastric symptoms or the loss of appetite. Nor did I expect the dizziness to remain afterwards.

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Since COVID I have experienced heartburn, fatigue and dizziness. Also a strange feeling of pressure of my sternum. Still got the sore throat and cough at times. I was very ill for 5 days and remained in bed but still weeks later I remain tired and out of sorts

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Had hip replacement August 2020. Covid April 2022. Had a few circulation peculiarities after surgery so some stiffness, toe locking in my feet in lst eighteen months of rehab. After covid ankle stiffness like wearing thick elastic bands. Leg ache. Toe tingling and no amount of physio improves it, falling asleep randomly when relaxing. I may be 68 but NOT a day napper. Feel bodily aged by 20 yrs. as had covid A in Jan 20. V ill 4 3 weeks. Cough

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My sleep patterns are severely disturbed since catching covid omnicron variant three months ago. I don’t trust myself to sleep deeply in case l can’t breathe properly or my chest hurts. I get palpitations that feel like they are in my heart muscle but nothing shows on an ecg. My body temperature elevates at time yet lm a decade plus beyond the menopause. I’m far more nervous about being in crowded spaces, terrified of being reinfected.

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Hi l would like to be able to test my personal fitness related to my long co vid symptoms eg l experience intermittent chest pains which l think might be related to lesions on my lungs from covid. I’m a registered asthmatic but regular checks for that are only done with me seated in a chair. I want to see what happens to my lungs after climbing stairs or walking a mile or two. I know what l used to be able to do.

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Got covid this June, so it has been about 2 months. Covid was pretty mild for me. Mostly just felt tired with maybe a sore throat. First noticed the breathlessness the same day I started exercising again after getting over covid. Since then it seems to happen randomly on and off, not too related to exercise

  • Report

Got covid this June, so it has been about 2 months. Covid was pretty mild for me. Mostly just felt tired with maybe a sore throat. First noticed the breathlessness the same day I started exercising again after getting over covid. Since then it seems to happen randomly on and off, not too related to exercise

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Breathlessness, abdominal pain, chest tightness, fatigue, car sickness, and heartburn. Doctor said possibly acid reflux symptoms. Blood tests, EKG, and Chest xrays show heart and lungs are fine. Possibly anxiety? I have issues driving because I start breathing differently and sometimes start shaking. But being in an Uber can also cause my breathing to be strange. Hope we find a cure to this long covid thing!

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Breathlessness, abdominal pain, chest tightness, fatigue, car sickness, and heartburn. Doctor said possibly acid reflux symptoms. Blood tests, EKG, and Chest xrays show heart and lungs are fine. Possibly anxiety? I have issues driving because I start breathing differently and sometimes start shaking. But being in an Uber can also cause my breathing to be strange. Hope we find a cure to this long covid thing!

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Significant weakness in a limb, auto immune conditions, inability to speak.

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Fatigue, brain fog, loss of coordination and cognition. Reactions/allergies. Depression. Anxiety. Shortness of breath. Heart palpitations. Tremors.

  • Report

I got Covid on 24th Dec 2021, and 7 months on I still have a fever for about 2-3 days on an almost weekly basis. Other symptoms include pins and needles and bad circulation. I tend to have anaemia and Raynaud's, so some of those seem to overlap (the pins an needles feel similar to when I'm very anaemic). I also get RLS but it's very intermittent. Almost as intense as from SSRI side effects, but it comes and goes.

  • Report

Still very fatigue d after minimal exertion.i.e. a little light house workI f I attempt to walk for more than a few metres I usually feel light headed and fatigued and sinetimes I still get flu type symptoms a day or so later Painful knee and thymb joints and leg muscle pain Before covid I power 2aljed every day

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Still getting flu like symptoms after exertion, sometimes.Cant walk more than a few metres without wanting ti rest and feeling light headed.Joint and muscle pain seem more severe now.Had covid in March 2020 and again in March 2022. I did seem to improve more after Moderna vaccine and afain after second bout of covid.Wondering if this could indicate viral remnants present

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Tingling all over my body particularly cheeks, legs, arms, hands. Had covid June 2020, flu like symptoms for a few days. Tingling came on during the illness and has persisted

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Vertigo and dizziness, feels like it caused from a pressure at the top of the bridge of my nose. Also causing right side facial numbness mainly around the eye socket and down the cheek to the jaw. Hot flushes. Feel like I’m going to pass out from this.

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Dysfunctional breathing feels like air hunger.

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Fatigue can feel like moving through treacle or sludge. A crash feels like being stuck in a mud pit. Cognitive dysfunction can feel like being drunk (including slurred speech and slight giddiness), or just slow moving mentally. Sometimes cognitive dysfunction feels like brain cogs are rusty and jammed - it feels as if they are screeching against each other and makes me recoil. Sensory hypersensitivity can feel as if sounds or light hurt.

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Head hurting: feels like my brain is being squeezed slightly. It's tight and uncomfortable, makes it hard to concentrate. Maybe similar feeling to when you stand up too fast and feel dizzy, although I don't feel dizzy! Fatigue: limbs feel heavy, hard to keep head up without leaning against something, no energy, can't walk at normal pace Breath: feel like I don't get enough oxygen, shallow breathing, sometimes I notice I am not breathing?!

  • Report

Breathless, brain fog, no concentration, chronic fatigue, memory loss. Physically exhausted, struggle to exercise, climb stairs or find enthusiasm for life, now mourning my 'old life'. Feel like I've aged 20 years. Anxious about driving as sleep hits after a couple of hours 'exertion'. Tinnitus, 'covid toe' numb feet, tremors,burning legs, sleepless nights. Daily yoga breathwork, sterimar nasal and manuka, black seed oil and vit D help a bit.

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Covid Sept 2021. Getting off beta blockers and vitamins has resolved my anxiety and palpitations. We are not crazy. It was very hard to do. I’m careful about relying on supplements or meds. Can do more harm than good IMO. GI,heart,dysutonomia,brain fog,anxiety,depression,lungs,numbness,tingling,PEM etc Seem to be improving very gradually since mid April 2022. Out of work since getting ill. I’ve stopped chasing recovery. REST Live day to day. ❤️

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I had Covid in April 2020. I was very ill for 2 weeks and developed a DVT. I have continued with ill health ever since (Long Covid). I have suffered from cognitive and memory problems, fatigue, joint pain, myalgia, neuropathy, neurological and GI problems, tinnitus and vertigo and various skin problems. It has caused me to have an autoimmune disease and Fibromyalgia. I have not been able to return to work and face losing my nursing job.

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I caught covid in May 2020 and never recovered. I have got severe fatigue, post exertional malaise, brain fog, dysautonomia, sore throat, painful glands, muscle,joint and nerve pain, intermittent rash (pale pink and lacy), headache and depression.

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Had a mild case of Covid early in Feb 2022. Was affected with flu like symptoms for about a week. Seemed to be back to good. Months later I started getting anxiety and heart palpitations with sporadic stabbing like chest pains, to start. Weeks later I noticed slight numbness in my face (mainly right side, around my mouth), 2 days after that I had head to toe pins and needles, followed by body tremors, mild tinnitus, body heaviness, jittery inside...

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Reading other posts reminded me I also had worse symptoms (nerve pains started) after vaccinations. Still went ahead with boosters = temp pain increase. Also have word finding difficulties & random substitution/ sentence muddling. Had similar with migraines. Dreadful difficulties with concentration - keep finding tasks I’ve left half done, or wondering why I opened my laptop. Pointless going to GP again, but don’t want forgetting. Good luck all!

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15 months after mild C-19. Fatigued far more quickly than before. If I’ve overdone it, legs start to drag especially after sitting. Bending over makes me pant. Hot spots in random places, tinnitus is constant. Pins & needles spread up my arms when tired. Exercise that raises my heart rate =24-48 hours later I get shooting pains under my skin, partic in my hands & feet but face & legs too. No sense of hunger or thirst ever. Sore throats frequent. ...

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Crushing fatigue like someone flicked off power switch since March 2020. Chest pains upon exertion. Had one shot of astrazeneca March 2021 and long covid symptoms went up several notches into nerve pains in arms, legs, hands and feet - numbness, tingling, burning, aches, tremors and a feeling of terror and desperation. A shadow of my former self. Frustrated, angry and very scared. Lonely, isolated, no proper help, no job, no treatment. Drowning. ...

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I had mild Covid and recovered within 8 days but have after effects that are worse than when I tested positive. I have felt low energy and fall asleep most days. My legs feel heavy and ache. For a week or two after testing negative I had headaches and occasionally migraine.

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Coughing frequently when eating sometimes. Cough can get so extreme feel like might loss consciousness. This did happen once in 2020. Have asthma so makes it worse.

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Long covid since Nov 2020. Fatigue, blurred vision, tender neck glands, restless legs at night, muscle aches and pains that I use to get after a gym programme but now without doing anything. Joint pain too. Heart palpitations - noticed its after eating carbohydrates. Initial loss of taste and smell became parosmia (many foods taste of chemicals) for 14 months but now almost back to normal. Brain fog and cognitive impairment. Tinnitus.

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Contracted covid 6 weeks ago, bad chest, headache, the usual, unable to get out of bed, positive for 14 days, now don’t recognise myself, just turned 50 was a very fit woman, when I walk a very short distance oxygen levels drop to 83, lungs burn, stabbing leg pain, buzzing in heart which goes up to my head. Numb arms, oxygen 83 while this episode happens, tremors, unable to recall information, no appetite, muscle pain.. total fear of the future

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Cognitive issues are more frequent (I've had LC for 15 months): unable to retrieve words and/or similar words coming to mind eg travel instead of traffic; not realising I've said/asked/discussed something already...sometimes multiple times (OH noticed this); momentarily forgetting how to do something v familiar eg starting the car..... Also, tinnitus is much worse just before a fatigue crash (& during)..like a warning sign.

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I've posted previously about numbness on the left side of my face. That's been since 22/03/22 and remains unchanged. Now I am very unsteady on my feet, my eyesight has deteriorated rapidly so can't drive, and I have developed terrible tinnitus in my right ear. I sleep +++, and just seem to be falling apart with a new symptom pretty much daily.

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I’m 32 and have gone from being a busy, very active, social healthy person to feeling like this constant exhaustion and pain shooting around my body will never end. I got covid on Xmas eve 3 months ago, I was very ill with it and I’ve never got better. I’m on a waiting list for a long covid clinic and I’ve only just accepted that this is how I feel and to not fight it. Everyday I feel I’m walking through thick treacle and my bodies running at 20%...

  • Report
  • 2nd April 2022

Had mild covid in Feb '22, recovered quickly. 3 weeks later began feeling palpitations and 'buzzing' feeling in thighs and legs along with heart palpitations. Gastric issues, bloated stomach and nausea. Tenderness in ears and head. Brain fog along with forgetfulness. Could not function normally, as a hugely busy mum/carer, life proving very difficult. 3 weeks later, palpitations and GI still intermittent, leg throbbing easing, energy a bit better...

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Since recently recovering from Covid I’ve had low energy levels, tiredness and sore mouth. Loss of taste and smell.

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I had a COVID-like illness mid-Feb, when my partner had COVID. I never got a +ve LFT/PCR. Hoarse voice & cough continued until last week when over the course of a day the left side of my face went completely numb. A&E confirmed I had not had a stroke and that it was post viral. By 2 days later the whole of the left side of my face is numb & pressured & remains so a week later. No pain, just numbness. I try not to get too scared, but it's hard!

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Glad I found this page! 3 weeks past infection, muscle twitches, severe in my legs due to old injury. Twitches in other parts as well, irritating but manageable. Disrupted sleep pattern, cold sweating every night. Tingling/numbness in face, cheek/right arm, comes and goes. Heart palpations on/off. Stomach upset, lost 7 kg since infection start due to loss of appetite and loss of smell/taste, which has now returned. Itching on arms and in groint....

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Left foot toes start to tingle then go numb. Left leg becomes numb. Left arm becomes numb. Left side of my face goes numb. Lips feel swollen. My brain aches and feels pulled to one side. Right side of my body can't carry me. Hard not to pass out but people can see you and this makes it so much worse. Lasts for a few minutes then gone except for the tingling. This went on for weeks. Then disappeared for months. But begining to return recently.

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Headaches, brain fog & nausea exacerbated by cognitive tasks - reading/conversations/puzzles. After a short time I can't follow the words i'm reading/someone's saying and can't formulate a response. Feels like physically pushing thoughts through gravy, can't make connections between or recall things. Noise/screens and moving my head makes nausea/headaches worse. Anxious about unpredictable situations. Crocheting, walks & time with friends help.

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Headaches, brain fog & nausea exacerbated by cognitive tasks - reading/conversations/puzzles. After a short time I can't follow the words i'm reading/someone's saying and can't formulate a response. Feels like physically pushing thoughts through gravy, can't make connections between or recall things. Noise/screens and moving my head makes nausea/headaches worse. Anxious about unpredictable situations. Crocheting, walks & time with friends helps.

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My full list of symptoms include: fatigue, fast heart rate, heart pain, leg aches, joint pain in legs & ankles, headaches, nausea, GI issues, insomnia, brain fog/memory issues, anxiety. Currently trialling low carb, low histamine diet which appears to alleviate some symptoms!

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I feel like I’m trapped in a body that I don’t recognise. I used to run 5k 3-4 times per week, was very sociable and a high achiever at work. Now I’m house-bound with crushing fatigue, I don’t even have the energy to get dressed some days. I can’t read or watch tv for long as its too tiring and any small amount of stress puts me in bed. My heart rate can sporadically jump up to 150 when walking slowly. Some days it aches so badly. I miss my life!...

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The trembling is so scary, it can be fine for days, and then bang! It comes on full force and I can't hold a drink safely!

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I had ME/CFS for 40plus yrs, declining very slowly for the last 10, then mild covid. Disaster. From walking ok outside with rollator to bedbound in weeks, still much the same 2yrs later. Breathing feels heavy, crackles and tinnitus, tastes are a bit off, O2 sats randomly drop into 80s for a day or so. Sleep a lot, PEM threshold very low. Take LDN, B12, flushing Niacin and use VNS. Awaiting chance to go for help apheresis in Germany.

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When I had Covid I could not sit or lie down. I spent hours walking about the house. This left me with a terrific pain in my hip which recurs from time to time. I have had xrays etc. And they say it is refracted pain from my spine. However only had thus since the day I had Covid. Memory disastrous. Used to be brilliant but cannot remember things which were always available on my head before Covid. Some sweet things taste Sally.

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I often can’t watch anything new on TV or read a book as I can’t take in the storyline & it hurts my head.I always feel like the word I need or name of something is just out of reach so I can’t see it when I’m talking or writing. I have to write down everything as I won’t remember in mere minutes & am left desperately trying to remember for many hours.I had a photographic memory (proven by psychologist) & this has now gone so I don’t feel myself....

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Although I was already disabled due to EDS, OA, PCOS & others I have been left having to use a mobility scooter or wheelchair to go more than a few metres. I still use oxygen to mobilise & am often too fatigued (mentally or physically) to drive so I have a tremendous feeling of isolation. I can’t climb stairs alone so sleep on a hospital bed in my lounge with a commode in the room. I feel abandoned by the government & left trying to cope.

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Because of how COVID & EDS managed to work together, even when I’m feeling my best I can struggle to breathe due to the diaphragm moving up when my lungs collapsed so I only have 43% lung function left after 18 months. Fighting for breath when yours SATS drop down low is the most terrifying feeling ever & takes me right back to ITU. My PTSD is especially triggered by these sudden events.

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Hi symptoms are - breathless, struggling more to breathe out than in now so hey guess it’s progress as not struggling with both . tinnitus, dizziness headaches and fatigue , word finding issues - use wrong words. Previous ME cfs sufferer but this brain fog feels different! Good luck with recovering everyone

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My insomnia is infuriating as I’m so tired both mentally & physically but it’s like I have an electric charge making it impossible for any part of me to relax. I can’t build up any muscles to help with walking, climbing stairs, etc as I overdo it very quickly & am bedbound for days afterwards. My brain fog drives me mad as I can’t pull up simple words or dates when I need to - others try to finish my sentences and I want to scream! I’m not stupid...

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I have chronic fatigue where I am so tired that I have no option but to lie down and sleep. It feels like my entire body is in pain but can’t move to make it better. I have been left with only 43% of lung function and I can be left gasping after only walking to the commode and back. It feels like I can’t get any oxygen in and that I have somebody sitting on my chest preventing me from being able to take big breathes. There are other things too.

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Exhaustion on a scale that is hard to convey to others.Virus type symptoms recurring since March 2020.Feeling better for a few days, then feeling like I was back to square one feeling ill No energy to do even the smallest of household tasks, all this after power walking every day before contracting the virus.Deep muscle aches in legs and knee joints stiff and hurt. Improvement about 10 days after Moderna booster, so hopefully this will continue....

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I too have constant buzzing, mainly in my lower legs and hands. This becomes worse with increasing fatigue.

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I had covid in August and I have had neurological problems that seem to be slowly improving.i have the same buzzing in my body and a numbness in my cheek .I also have buzzing in my face 😈

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I had covid in August and I have had neurological problems that seem to be slowly improving.i have the same buzzing in my body and a numbness in my cheek .I also have buzzing in my face 😈

  • Report

I'm 27 years and my covid symptoms were high temperature for a week. In short I felt like I had a flue. I was quite well first month after I got it but after that I felt my anxiety and chronic fatigue (I had them before) getting worse. Now almost 3m after I have pins and needles all over my body which gets worse when I do anything or at night. I'm so close to going to emergency because those sensations are quite painful and cause cramps or twitc....

  • Report

I have three symptoms. Breathlessness, insomnia and memory issues. The insomnia has been particularly debilitating, with sometimes no more than three hours sleep in 24 hours.I would regularly wake up 1.5 hours after going to sleep feeling wired but fatigued at the same time, not unlike jet lag but it was permanent. At present I have just started trialling use of a strong SAD lamp to try and reset my circadian rhythm.

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Initial continuing symptoms were mainly chest pain and chronic fatigue. Later short term memory loss became more of an issue as physical symptoms waned. Throughout this, in the background, blocked sinuses and effects of this are shown on brain scan. Subsequently, tinnitus (high pitched) and clicking noise in one ear. The latter is irregular but permanent and reacts to external sound which, at worst, becomes white noise.

  • Report

33 y/o M. Covid Jul/Aug 21. Severe illness (not hospitalised) pneumonia & lung scarring. 6 weeks post recovery noticed tingling in fingers & cheek numbness whilst exercising. 10 weeks post recovery lightheaded & dizzy with heart palpitations. Current day: heart palpitations (being tested for afib) numbness/pins&needles in hands&feet, Lightheaded, cheek numbness, chest pains. Have trouble focussing on text, existing tinnitus has become worse.

  • Report

I was infected with COVID April 2020, classic symptoms including purplish, numb coloured toes on both feet. The numbness on both feet has not disappeared like the odd colouring. My right foot is worse with three toes still numb. Occasionally, I also get tingling in the toes (and even the left foot toes).

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Aches and fatigue. Feels like flu if I do too much. Odd constant tingling under cheek. Sensitive scalp, mid back, ear, throat and neck. Itchy skin all over, burning sensation around lungs, similar to feeling of plueracy I had 20 years ago. Feels like immune system is battling highlighting any vulnerability. Mental work equally affects. Drama teacher and can’t remember my neighbour’s name to write Xmas card. Only worked three days in last five. ...

  • Report

450 words is not enough! I am affected mentally and physically by long covid. Mentally: confusion, fatigue. Physically: exacerbation of existing conditions such as asthma and joint pains, plus sudden onset of new conditions such as attrial fibrillation. Would like to be treated as a whole person and not just a collection of symptoms. Would like to understand the science of long Covid better. Better still, I would like a cure!

  • Report

I remember the week when I think I had Covid back in March 2020. Since then, along with the other reported symptoms, I have developed a level anxiousness that I have never felt before. It affects my work life (I am about to give up my job as have had so much sick leave), driving, going to the shops, making phone calls, socialising and my relationships with others. 21 months in, I am a mere shadow of my former fit, confident, bubbly self.

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Typing, and forgetting how to spell, random words popping into sentences that you don't recall writing and often don't spot. Choosing entirely the wrong word but not noticing. Not being able to add up or subtract in your head because working memory can't hold on to more than two numbers at a time. Losing autobiographical memories of decades or days ago. Means you start to lose the sense of who you are.

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Brain fog doesn't really cover it. At times I feel like I have developed dyslexia/ S&L issues, ADHD and dementia, and I don't use those terms lightly. Struggling to find the right words when speaking, losing train of thought mid sentence, having points to make that just slip out of your grasp and then shoot away, not to be recovered for hours.

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The cognitive effects are huge. Just doing these few contributions has exhausted my brain energy so I can't type properly now. I will return to this tomorrow (as I say a lot)

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Pain. My pain seems to be localised to my legs. It varies from barely-there to deep gnawing pain that impacts on my ability to think. Usually worse at night. It is nothing that can be seen on examination, it can be one leg or both. It is similar to the growing pains you get as a child, but worse. OTC painkillers have no effect and GP unwilling to treat symptoms without knowing cause. So I stay in pain.

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Yawning - especially when standing or moving or thinking. It comes on suddenly and is big deep yawns. I assume by body is trying to get more air, but I don't have shortness of breath anymore, so it is a bit odd.

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When I have overdone things, one odd symptom is what I call face-ache. My jaw and surrounding area just hurt, and I feel the need to wrap my neck/jaw in a scarf/wheatbag to keep it warm and soothe the pain. I can't feel any glands being swollen but the underside of my jaw/top of neck feels very tender. It is very distinctive and a frequent visitor.

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Tinnitus is a constant companion. Louder when exhaustion is worse. Sometimes more than one tone. Sometimes a new tone will start and stop within a few seconds, but there is always a noise. I used to adore and seek out silence or nature noises. Now I struggle to find that peace.

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Tinnitus is a constant companion. Louder when exhaustion is worse. Sometimes more than one tone. Sometimes a new tone will start and stop within a few seconds, but there is always a noise. I used to adore and seek out silence or nature noises. Now I struggle to find that peace.

  • Report

Tinnitus is a constant companion. Louder when exhaustion is worse. Sometimes more than one tone. Sometimes a new tone will start and stop within a few seconds, but there is always a noise. I used to adore and seek out silence or nature noises. Now I struggle to find that peace.

  • Report

Ten months on, I am now better able to predict some of the impacts of any activity. Dog walk = 1-2 days of worsened exhaustion. Work/health meeting = 2-3 days. Low key weekend with friends = 1 week. It means I am constantly trying to balance my emotional/mental health needs to leave the house/see friends/have any semblance of a life, with the inevitable incapacity that will follow.

  • Report

Exhaustion and cognitive impairments have shrunk my world. I am no longer the same person. My quick movement and quick wit are no more, I am a hugely dulled and dialed down version of my previous self.

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Fatigue has been the most debilitating of my symptoms. I feel, however, that the term fatigue doesn’t really reflect it’s severity. Most people seem to conflate fatigue with just feeling tired but it’s so much more than that. It feels like your body is shutting down. At its worse I struggle to move, think or speak. My limbs feel so heavy the weight is unbearable. It’s utterly debilitating.

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I've noticed that just before and during a bout of fatigue my tinnitus is much louder, almost shrieking in both ears! It's almost like a warning siren just before the fatigue hits - and it carries on being v loud during the time I feel fatigued then gradually returns to background levels of noise. I've had tinnitus for a number of years and haven't noticed that it's related to any other factors / health-related issues before - very curious.

  • Report

Long Covid; is disconnection, fluttering thoughts, forgetting, anxiety...because you cant recall, which makes you more anxious, fear; of feeling worse, wonder; should you (clean house, visit a friend, go to work)...in case it makes you worse. Long Covid is a shadow of you. You cant feel or hope (as they are always dashed). Everything slows down. Constantly battling between your old self and the new self. No exercise, no socialising, exhaustion.

  • Report

I had Covid in January 2021 and took about 3 weeks to recover (I was not hospitalized). I have since then been suffering from constant headaches, brain fog (especially if I had a busy ‘brain day’ with meetings requiring focus and attention), numb legs (above and below knees), back pain, dizziness, sensitive scalp, burning sensation on my upper back (as if I had sunburn), loss of memory or running our of words at the end of the day. i am desperate...

  • Report

7 months post COVID, the fatigue is my ongoing issue. Even after a good nights sleep, I am never fully rested. By 11am, 2pm latest, I find my focus diminishing and tiredness setting in. Literally find myself nodding off to sleep in front of my screen. People refer to brain fog, it is s perfect description of what it feels like. It's like someone has changed the focus on your brain's lens and nothing is clear anymore.

  • Report

Long covid for past 3 months and seems to be getting worse. It's as if the immune system is slowly closing down. Fatigue comes more than it goes. Brain fog is awful, be in the middle of a sentence and all of a sudden it turns into an empty box. I had psioratic arthritis and osteoporosis in remission for the past 7 years, brought out again. Terrible pains left shoulder blade travels to shoulder and down arm. No sleep pattern, my life is upsid...

  • Report

Long covid symptoms have included severe fatigue, continuous headaches, dizziness, varying shortness of breath, loss of smell, difficulty finding words and brain fog. I am no longer the person I used to be. People just say "you look ok" and don't understand what is going on underneath.

  • Report

The headaches have been pretty continuous for the past 15 months. At the start it was like having the worse hangover every day with headaches so severe that all I wanted to do was lay down and close my eyes. As symptoms improved, the headaches were less severe but still present on a daily basis. Always niggling pain that could easily get worse with too much physical or cognitive activity.

  • Report

The fatigue is debilitating. You wake up feeling like you've never been to sleep and it's an effort to do anything except lay down. It feels like you're walking around with a tonne of bricks on your back and no amount of rest makes any difference. If you over exert even slightly, you can pay for it with increased fatigue and other symptoms for so longer afterwards.

  • Report

The fatigue comes and goes. Most days I struggle to wake up, require a long mid-day nap, and sleep poorly. The first few days were the worst i struggled to breathe properly , i lost my sense of taste and smell which meant i was not eating meals at all. As a result of this i lost weight due to a lack of appetite and skipping key meals. I also had a dry sore throat and was in and out of sleep.

  • Report

The tiredness seems to be a never-ending battle between 'Should I even try this?' to 'Not a chance, bed it is'. I have the insomnia where i can lay in bed for hours without even remotely sleeping. The afternoon 'crash' as I have termed it seems to just be completely random. Are we tired and angry about being tired? Or is the body in such a confused state it doesn't seem to be able to relay what is truly happening?

  • Report

The fatigue comes and goes. Most days I struggle to wake up, require a long mid-day nap, and sleep poorly. I travel through the day in haze- forgetful of last nights' movie plot or conversations I've just had. I'm thankful for the days I wake up and don't feel like I have a massive hangover. I'm confused. Am I depressed because I'm tired - or tired because I'm depressed?

  • Report

Post exertional malaise meant that when I tried the early stages of 'couch to 5k' jogging and increased the intensity too quickly, it led to a big crash which increased the level of omnipresent fatigue and took weeks to return to my pre-crash level of recovery.

  • Report

While the level of fatigue can vary in intensity, it never gives you a break. You always start the day like a phone with a partly charged battery, and have to plan the day's activities accordingly.

  • Report
  • 12th June 2021

Heart palpitations- feels like heart attack when bad, can’t move / use left arm. Deep breathing helps but then you feel dizzy from deep breathing. Wakes you up in the night, feels like heart is hitting rib cage and is going to jump out of your chest. Propananol tablets have slowed down so now long and slow but very hard beats when palpitating apposed to fast, shallow beats before hand.

  • Report
  • 12th June 2021

Fatigue - feels like you wake up with a hangover every day, it’s an exhaustion I’ve never known before that can’t be solved by sleeping 10 hours or having naps in the day. Exhaustion - going on a walk and then slowing down to a snail pace even though you just need to get home to lie down to feel better but you can’t go fast enough to get there. Everything suddenly feels too much and if you could sleep right there you would!

  • Report

Pain: My body feels as though my joints have been smashed with a sledgehammer. Fatigue: I am out for a walk and suddenly I’m hit by a bus - I know I have to get straight home but it feels as if I will have to crawl there on my hands and knees. Insomnia: I am so tired I can’t wait for bedtime, but at the same time I dread it. I know I will spend the next 6 hours tossing and turning in an agitated tussle some place between awake and sleep

  • Report

Air hunger can come from nowhere. It feels like your automatic breathing pattern isn't enough, you aren't getting enough oxygen and you have to override it by breathing deeper while trying to keep calm.

  • Report

A wave of heavy fatigue feels like a sudden hit of extreme exhaustion where whatever you were doing has to be abandoned, breathing feels hard work, sitting up is too much and all you can do is lie flat, close your eyes and wait for it to pass.

  • Report

Inclined to get migraines & headaches in past. Headache present in first 3 weeks then had a period where no headache or migraine. About month 6 had migraine, worst since 2008. Since then been having regular headaches and earache- approx every 1-3 days. Have had further migraines which again were really bad & triggered lower abdo pain, cramp & diarrhoea, muscle & joint pains and increased fatigue, abnormal skin sensations.

  • Report

In 2nd week of acute Covid I experienced the following situation- managed some porridge, before finishing it had severe lower abdo cramp, pain & urgency. Continued over a week, unable to eat & exhausted. Since then I have episodes anything from a few weeks to a couple of months apart with same onset- whilst eating or immediately on finishing - severe lower abdo pain, cramp & diarrhoea for 24hrs to a week.

  • Report

Other symptoms- internal tremors which at times become visible. It possible to distract from the internal tremors to a certain extent but not when they become visible. I also get pins & needles, tingling & numb sensations in different parts of body but in particular face, hands, lower arms, legs & feet. Daily experience muscle cramps in legs, feet, hips, hands & lower back.

  • Report

Long Covid fatigue for me was an all encompassing tiredness, which pervaded into every muscle, joint and bone. It felt like I couldn’t move. Sleeping didn’t help. Brain fog that often goes along with the fatigue is for me a feeling of being unable to process information amongst other things. My head feels as if it is full of cottonwool. I’m unable to read effectively, miss words/letters when writing, mix up word order & forget what I’m saying.

  • Report

fatigue feel like the ultimate of exhaustion, I'm used to being tired, I'm used to functionating on very little sleep, but this is different, its more, its overwhelming, it encompasses my entire being, it floods in uncontrollably like a weight on my body. leaving me unable to move, function, or do anything other than surrender into the most unfulfilling sleep. its debilitating, I may have survived, but it has still taken my life.

  • Report

I find the term brain fog not entirely descriptive, I struggle to recall words and memory's particularly when trying to describe something. I struggle to remember things that have happened, most of my long covid experience has become a blur. I struggle to think my way through problems practically, forward planning and visualisation of tasks is a problem. concentrating is a problem. I cant focus on conversation or the task at hand very easily.

  • Report

Post exertional malaise also feels like something people underestimate - after a fifteen minute slow walk on flat pavement = I am in bed for nearly three days, despite the actual walk and subsequent afternoon feeling my core symptoms (SOB, high heart rate, fatigue, aches, nausea) only mildly raised. Also - much exertion is actually mental, rather than physical. Reading a book for an hour = the afternoon in bed, sore eyes, headaches, nausea.

  • Report

Struggling with the term ‘Brain fog’ which seems like a reductive term for serious cognitive impairment - it’s more like a brick wall in my brain cutting off half of what’s in there. I can understand and communicate fine (luckily) but if you ask me to solve a simple problem it’s like the information is behind the wall, and just trying to access it is like taking a hammer to it; completely useless, painful, emotional, exhausting and stressful.

  • Report

Brain fog: skull has shrunk & is full of cotton wool. Can’t remember words when speaking, can’t spell words, familiar surroundings/people feel strange. Fatigue: body too heavy to hold up & muscles won’t do what you want. PEM: sore throat, burning pain in joints, crushing headache, muscles too stiff/weak to work. SOB: lower rib cage has tight band round so can’t inflate lungs. Palpitations: heart jumps out of chest or into throat All unpredictable...

  • Report
  • 11th June 2021

Since I caught covid in March 2020: - Facial numbness, right nostril, lips, around right eye. - Numb mouth & tongue with problems with swallowing. - Numb fingers & toes, including burning sensations & nerve pain. - Loss of sensation to parts of skin on the body. - Developed Raynauds syndrome - Trigeminal neuralgia - TMJ issues - Hearing loss - Tinnitus - Ear pain & pressure - Extreme joint pain - Fatigue & brain fog - Deteriorati...

  • Report

Neuropathy Legs filled with tiny, fast moving bubbles. Feet filled with solid ice. Nothing warms them. Legs, feet and body having random jerks of differing strength. Shooting sensations up and down legs. Pins and needles in buttocks. Sensations of bones being chewed. Sensations of bones being burned. Sometimes, all these sensations at the same time!

  • Report

Brain fog: Being unable to say common words. I can visualise the word but it won't come out my mouth. Forgetting. Forgetting lots of things. Trying to remember causes cognitive fatigue ... it's a frustrating, viscious circle. Try to use a laptop ... too many buttons to distract. Trying to read a paper... too many words, shapes, colours, smells, textures. Trying to shop online for groceries... placing the same order more than once!

  • Report

I experience debilitating fatigue. It feels like my legs are cardboard tubes filled with cold porridge... I heard Michael Rosen say this and it fitted my experience perfectly. My arms feel so heavy they might fall out my shoulder sockets. Opening a packet of crisps uses as much energy as making a full meal. My head is too heavy for my neck to hold up, so lying down is my only option. Doing too much causes many symptoms to return.

  • Report

Leg weakness is frustrating, it’s like walking through treacle or attempting to go around the supermarket clutching onto the trolley like you’ve a few too many drinks! Brain fog is like really hard work; trying to get the words out on a telephone call, but you can’t remember the correct word to say, it’s err, erm??? Or unable to read simple words just staring at them for ten minutes trying to break the letters down!

  • Report

"Brain fog". Most of the time it feels like my brain is stuffed with cotton wool and it is hard to concentrate on more than one thing at once. When I can concentrate, after some time I start to feel I have an object about the size of my fist in the top right-hand quarter of my brain, which expands slowly until I have to stop thinking. I also have memory lapses, I will forget what I did 3 minutes ago, yesterday, last week... I misunderstand thing...

  • Report

Muscle and joint pain is constant aches that appear and reappear in different places, for me accompanied by strong blue veins. Buzzy or restless legs feels like they are constantly 'on' and tense, with a tingling sensation.

  • Report

Fatigue for me felt like someone had turned on a tap and all my energy juice had drained right out. I become slower, both in physical and mental capacity. Brain fog is like I'd become a zombie - a blankness or void in my head, difficulty concentrating and performing actions, trouble finding the right words or using a series of words that didn't properly fit together.

  • Report

A multitude of symptoms that can't be explained by anything else, that have occurred since having the initial covid infection, seems to affect weak areas in your body that you have had issues with in the past - for me these are gut and ears. Symptoms can be anything from mild to severe, able to cope with them daily or ending up in hospital. Each day is different causing health anxiety and stress causing your symptoms to deteriorate as a result

  • Report

The fatigue, and indeed the brain fog, is a bit like having a vampire permanently attached to my shoulder. One that is asleep, and you're never sure when it will wake up and feed - and when it does it is literally draining. Energy gets sucked out of me by Long Covid Dracula and and then he sleeps again until the next time he is hungry. The brain fog is often preceded by a vice that connects to my skull and begins to squeeze.

  • Report

Brain fog feels like a gap or blank in my memory. I can try to bring thoughts back but they are usually gone forever!

  • Report

These symptoms have mostly gone but I felt them for months: Lungs were heavy and full and felt itchy inside. My ribcage was tender and painful to the touch, to lean or lie down on one side. My spine felt as if it were buzzing or vibrating - both at the bottom of my back and at my sternum. When walking my hands became red/white in mottled or patchy way like spam. Soft part of palms and feet were hot, tender and sore.

  • Report

Ribcage feels tender and painful to the touch and pain flares up when I lift or bend. Brain fog feels like a blank in my memory or thought process. I have to write everything down - even one word notes midway through a sentence. When I exercise my hands are red/white in mottled or patchy way like spam.

  • Report

Post Covid migraine makes my hearing sensitive & my sight patchy. I see a flash or two of light, I smell smoke or 'dryness' faintly, I have nausea, my tongue tingles and I feel pressure in areas of my face (pinched cheeks, an elastic band around my forehead). Generally I feel oppressed and I want to curl up. I have pain in my neck, jaw, sternum, armpit and head. My arms and legs become weak. I feel exhausted before and afterwards.

  • Report

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