An opportunity for people with personal experience of bronchiectasis to join a panel of patients, clinicians and policymakers to help develop a standardised tool to assess patient's self-management ability.
Researchers at the NIHR Imperial Patient Translational Research Centre are inviting people with direct personal experience of bronchiectasis to take part in their study.
The study aims to identify and measure the knowledge, skills, and attitudes (KSAs) that enable patients with chronic illnesses, and specifically bronchiectasis, to participate in the management of their illness. From this they hope to develop a standardised assessment tool to better understand the strengths and needs of patients with bronchiectasis.
For this reason, it is very important for patients themselves to be involved in developing this assessment.
Anyone over the age of 18 diagnosed with bronchiectasis and living in the UK are eligible to participate.
We have 7 spaces left and will allocate spaces on a first-come, first-served basis.
Unlike traditional studies, you will play an important advisory role where your experiences and insights will directly feed into and help shape the development of a new self-assessment tool.
If you choose to participate, you would be part of an expert panel of patients, clinicians, and policymakers with experience of bronchiectasis. You would respond to questions online on three separate occasions. Each survey builds on the group’s answers to the previous questionnaire. The questions are designed to hear your personal opinion relating to measuring a patient’s expertise in terms of knowledge, skills, and attitudes.
Each questionnaire should take approximately 20 minutes to complete.
This is an online opportunity, which will take place in 3 rounds over the course of June and July 2019. Because rounds 2 and 3 will be dependent on responses to the previous round, exact timings will vary.
Each questionnaire will take approximately 20 minutes to complete.
There is no financial compensation associated with this project. However, by participating in this expert panel, you will be helping the NHS respond more effectively to people with similar health challenges to you.
By registering to take part, you consent to being contacted by a member of the research team. They will provide you with a Patient Information Leaflet offering more information about the study, including how the data will be used, and be able to answer any questions you may have prior to you agreeing to take part.
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