Long COVID Research Involvement Hub
Welcome to our dedicated Long COVID page
Where patients and researchers can connect to co-create and share ongoing research into the long-term effects of COVID-19.
Maintaining the patient voice in Long COVID research
There is now a global commitment to enhance our scientific understanding of Long COVID, as well as improving the care, support, and treatment available to those affected.
We know that Long Covid is an illness made visible by patients and it is thanks to the voices of those affected, that this condition is getting the attention it deserves.
Which is why we have created this dedicated Long COVID research collaborator space, to ensure your voice continues to have ownership over how we carry out this research, and hopefully inform other research in this field too.
Find out moreHow to get involved
Post opportunities and content on this page
Are you carrying out research on Long COVID in the UK? Looking to connect with people who have lived experience of Long COVID? Do you have a story to share? Providing your work meets our overall guidelines, you may be eligible to post an opportunity on this page for people to take part in, or else a blog, video or news article to share. Download our content submission form to learn more or send general enquiries to [email protected].
Download submission formDefining Long COVID Symptoms
Researchers at Imperial College London would like to get a better picture of how people experience and define any ongoing/recurrent symptom after or because of COVID-19.
Terms like "fatigue", "brain fog" or "muscle weakness" are often used in surveys to monitor how many people are experiencing different symptoms during the COVID-19 outbreak. But we understand symptoms mean different things to different people.
That's why, as part of Imperial's REACT-Long Covid (REACT-LC) study, we are carrying out this citizen science-style "challenge" so those affected by ongoing symptoms are involved in shaping the research going forwards.
Find out moreBrowse opportunities
See how your insights, ideas and experiences can shape current research into Long COVID.
View all our Opportunities
Survey on Long COVID Health Services for Adults...
Share your experiences of using Long Covid service(s) in England.
Learn more
Survey on Covid Reinfections and their effect on...
Long Covid Support & Long Covid Kids are doing a short survey to explore Covid reinfection & how this affects Long COVID
Learn more
The WILCO Study - ‘Working out the Immunology of...
We are looking for volunteers to help us understand the cause of Long Covid, design a test for it, and propose treatment
Learn more“COVID-19 has had a long-lasting impact on so many people's lives and in more ways than can be imagined. Researchers need to connect up, collaborate and make it as easy as possible for people from all walks of life to share their experiences and inform how we tackle Long COVID, together.”
Philippa / Imperial College London ResearcherBrowse latest articles
Read about latest Long COVID research activity and findings from Imperial and other collaborators, as well as the difference VOICE members are making to what we learn and do.
View all our News & Blogs
Current Groups
Take an active role in a research project, shape conversations on important areas of research or simply follow developments as they happen.
View all our Groups
REACT: COVID-19 Community Network.
Join this Group to receive news updates and invites to events and involvement opportunities relating to Imperial’s REACT COVID-19 and Long COVID research.
Learn morePost opportunities and content on this page
Are you carrying out research on Long COVID in the UK? Looking to connect with people who have lived experience of Long COVID? Do you have a story to share? Providing your work meets our overall guidelines, you may be eligible to post an opportunity on this page for people to take part in, or else a blog, video or news article to share. Download our content submission form to learn more or send general enquiries to [email protected].
Download submission formShare an idea
Whether you’ve got a question about the research activity or an idea that might help, we want to hear from you.
Share ideaShare a case study
Case studies will be used to share learning about public involvement in Long COVID research and to inspire and motivate other members of the public to get involved in research and/or more researchers to collaborate with members of the public. If you have a case study, you would like to share please complete our case study submission form here.
Case studies can be provided in any format you would like; however we provide a template of some of the key points you might like to cover.
Share a case studyThe Long COVID Research Hub is managed by the Patient Experience Research Centre (PERC) at at Imperial College London, in collaboration with VOICE Global and Newcastle University.
- If you have specific questions about the public engagement and involvement activity relating to the REACT-Long COVID study, please email [email protected]
- If you are a researcher involved in Long COVID research and would like the VOICE community to support your work, please download and complete the submission request form and email to [email protected]. We would like the Long COVID Research Hub to also support and influence other national and ethically approved Long COVID research studies, where possible, so we are open to requests, which will be reviewed on a case-by-case basis.
- If you would like to get in touch with the REACT-Long COVID study team at Imperial College London to ask any queries about the research itself, share your experiences or put forward an idea, please email: [email protected]
Further information about Long COVID research and support
- To find out more about the REACT-Long COVID research study, including answers to frequently asked questions, please visit: https://react-lc.net [page still in development]
- Recommended patient support groups to meet and talk with others affected by Long COVID include:
- Long COVID Support Group on Facebook at: https://www.facebook.com/groups/longcovid/
- Long COVID SOS at: https://www.longcovidsos.org/
- Body Politic COVID-19 Support Group at: https://www.wearebodypolitic.com/covid19
Study Collaborators.
Imperial College London
Newcastle University
